On the
first Sunday in February 2018, I was involved with a “dementia-friendly”
training session. The venue was at my church, St. James’s, which serves both
Cambridge and Somerville. A few of people who came had some form of dementia
themselves. Immediately after my diagnosis in 2015, my minister, Holly Lyman
Antolino, took an interest in my disease. Another key part was filled by Beth
Soltzberg, who works at Jewish Families & Children’s Services in Waltham. We
were among volunteers in overseeing a volunteers’ training session for people
interested in being “Dementia Friends.”
What does this term mean? Volunteers are trained to detect
dementia and take appropriate steps. In a ten-page packet that was passed out
that February Sunday, the header on the left read “Normal Aging,” and on the
right, “10 Early Signs and Symptoms.” Some are subtle. They include, “Confused
about the day [of the week] but recalled it later.” On the other side of the
ledger are such things as, “Difficulty completing familiar tasks at home, at
work or at leisure.” Another warning is “Confusion with time or place.” This is
a significant one. And, one cell down on the chart is “Trouble understanding
visual images and spatial relationships.” People who have this trouble may want
to be screened for postcortical atrophy [PSA], a form of dementia that affects
visual processing.
The two most alarming signs are the last two on the list:
“Withdrawal from work or social activities”; and, more ominous, “Changes in
mood and personality.” I am no expert, but I would be alarmed if a loved one of
mine were showing these signs.
Another exercise, called “Bookcase Story,” showed how
certain skills and forms of memory are more durable than others: “Imagine that
each of has a bookcase that we’ve been filling up throughout our lives. Each
book represents our skills or memories.” A picture accompanying the exercise
shows a bookcase that is missing most of the books in the upper shelves, but
still has many books on the bottom two shelves. Emotions are much more durable
than thoughts, and short-term thoughts often dart away like
swallows—frustratingly for those of us who are living with dementia. The lower depths
of the brain are where the emotions reside. This is the domain of emotions,
which typically endure long after the higher levels of thinking have been
banished.
In another part of the session, participants were asked to
write out a step-by-step process for something you know how to do. I chose to
list the steps I take to make a sockeye salmon sandwich. First, I found a can
opener in one of our kitchen drawers. But I didn’t open the salmon immediately.
That would have caught the attention of one of our two cats, Rusty. Our other cat
is skittish, and only eats dry food, so we don’t have to worry about her
getting in the way. But Rusty is eternally voracious, and aims to push the
envelope. Only occasionally does Rusty get up on the wooden railing on our back
porch and plop down on the flashing. But when he does, it’s unnerving. When we
were renting in Somerville, we had a large cat, even bigger than Rusty, and
that cat did fall off our deck. We
were surprised that he wasn’t seriously injured. All he did when he got back
into the house was to hiss at his sibling.
I have digressed. I had to make sure one of our two cats,
Rusty, didn’t rush into our kitchen as soon I opened the can. And it was a hot
day, so I wanted to eat on our deck. But I still wasn’t certain that Rusty
wouldn’t escape onto our deck. A couple of months earlier, Rusty did escape. I understand that cats tend to have excellent balance, but Paula and
I were acutely aware that he could break a bone or worse. We had to entice him
with wet food to get close to him so we could snatch him.
But back to the kitchen, with the aim of constructing my
salmon sandwich. First, I found a small stainless steel bowl, large enough for
three servings. Then, I grabbed two slices of multigrain bread from a local
bakery that I have been patronizing for more than fifteen years. I mixed the
olive oil and the balsamic vinegar, along with chopped celery and onions, in
the mixing bowl. I also sprinkled some fresh-ground black pepper, before mixing
everything together. Finally, I opened the can of “Red” salmon, more familiar
to me as “sockeye” salmon. Before I finally opened the can, I made sure that
Rusty was sleeping. Fortunately, he was. Then I quickly mixed up the contents. And,
fortunately, Rusty doesn’t like my home-made dressing. He’d rather have his meaty
cat food.
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