In
January, at the meeting of the Massachusetts Alzheimer's Grant Advisory Committee, I
became acquainted with Michael Kincade, who for many years has worked as the
community relations associate for elders in the predominantly African-American Boston
neighborhood of Roxbury. During the meeting, Kincade, as well as others,
commented that people of color tend to be less willing to be screened for
dementia. As one woman at the meeting commented facetiously, “We in the African-American
community don’t get that. We just get memory loss.”
Yet, studies suggest that African-Americans and Hispanics
are at a greater risk of developing Alzheimer’s than the U.S. population at
large. According to the 2011-2012 Alzheimer’s
Disease Progress Report, a sample group of Hispanics (mostly Puerto Rican
immigrants) were more likely to show symptoms of the disease and experience
more severe symptoms at their first evaluation. The results of a large study at
Rush University in Chicago indicated that older African-Americans with low
levels of education had not just poorer cognitive function but also more
limited cognitive abilities compared to whites with the same level of education.
Earlier in his career, Kincade worked in Boston’s affluent
western suburbs, where senior centers could attract 30 or 40 people to their
events. But in Roxbury, Kincade soon learned, he would be facing an unexpected obstacle.
When he asked a colleague to drop him off at Roxbury’s senior center, the
colleague replied, “Uh, Mike, we don’t have one.”
“We know that
Alzheimer’s is more likely to afflict elderly African-Americans than anyone
else,” Kincade said. “And the real crazy thing about this in Roxbury is, how
can I sit down with them and talk about this disease when I don’t have a
designated site to meet with them?”
Seniors often congregate on their own at a centrally
located McDonald’s.
But the lack of suitable meeting space in Roxbury didn’t
prevent Kincade, back in 2001, from organizing the first African-American Community
Forum on Memory Loss. Over the next five years, it became the largest annual
gathering of African-American caregivers in the nation, attracting more than
200 attendees annually to a site in the city’s Dorchester section.
“When they showed up, it was a shock and surprise to many
people,” Kincade said.
Among the panelists were a neurologist, an estate-planning
attorney, State Rep. Gloria Fox, and an admissions director of a nursing home.
The model, Kincade noted, has been replicated in many
other U.S. cities.
No comments:
Post a Comment