Last
week, Mike Belleville, one of the guys in my Alzheimer’s support group, and I
told eerily similar stories involving Apple Stores, those gleaming technology palaces
where all the employees wear matching shirts and none look older than
twenty-five. While our circumstances were slightly different, we basically
experienced the same frustration.
In my
case, after a period of growing irritation, I phoned Paula for help, and a few
minutes later found what I was looking for. Mike, on the other hand, disclosed to
his salesperson that he has Alzheimer’s. And, just like that, the salesperson
became much more helpful.
On Monday, Mike and I attended a conference on the “Dementia
Friendly” movement, which originated in Britain and is now picking up momentum
in the United States. As Olivia Mastry, the featured speaker at the event, noted,
the approach is based partly on the Americans
With Disabilities Act, the landmark legislation that became law in 1990.
“What is the curb cut for cognitive impairment?” Mastry
asked her audience. “Most importantly, it’s relational. It’s whether we can
walk with each other, support each other, and be equipped to relate to people; it’s
clinical services to which you can find your way that are equipped all the way
with signage. And it’s what people need to know when they see differences.”
Mastry noted that her organization seeks to draw in not
just people in health care but also those who work in related fields, such as municipal
government, which coordinates assistance for military veterans, and providers
of long-term care for people with dementia. And, perhaps most important, the
people who are experiencing dementia themselves.
Nationally, according to Mastry, the annual cost of
dementia care is over $36 billion—and that doesn’t include the service supplied
by family members. I heard one young woman who serves as caregiver for a parent lament that the
parent’s care has created a heavy financial burden for the caregiver herself,
in terms of lost income.
In Minnesota, a statewide dementia-friendly plan was introduced
in 2010 and now serves as a national model. It took two more years to work out
the details.
“The concept was to put in everything we know and organize
it in a way that people could use it in a useful way,” Mastry said. “It’s researched,
and evidence-based. We know that the best thing we can do is put all the best
practices in one place.
“How does this catalyst lead to a national movement?” she asked
her audience. “Well, you do that. This is owned and driven by all of you, and
all you need to do is the next step.”
During the break for lunch, I encountered a former
colleague of mine at the Massachusetts Municipal Association who is now the
assistant town manager in the town of Westborough. We agreed that our former employer,
the advocacy and professional organization on behalf of the state’s cities and
towns, would be well-suited to champion this cause.
To learn more about Dementia-friendly
communities, go to dfamerica.org.
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