For much
of this past Saturday, I was feeling exceedingly good about myself. My wife
Paula and I spent the morning at the Bat Mitzvah of a neighbor of ours, a
thirteen-year-old who showed considerable poise during the lengthy service.
Afterwards, the girl’s grandmother, an author of novels for young readers,
complimented my blog, as did our representative on Somerville’s Board of
Aldermen. Late that afternoon, I rode my bike at a brisk pace to Lexington, a
15-mile round trip. As dusk was settling in, I turned back toward Somerville.
I’d had the foresight to bring along my detachable headlight, along with a
day-glow vest. Since Lexington is at a higher elevation than Somerville, most
of the ride home was downhill. Other riders were scarce, and I appreciated the darkening
solitude. I could feel myself breathing, the essential act of life, and I was
experiencing the bike rider’s equivalent of runner’s high. I felt like an
athlete in his prime. In this exalted mood, it was possible to fantasize that
my diagnosis of Alzheimer’s was a mistake.
Once I returned home, I took a hot shower, dressed, and began
to prepare our dinner, a pumpkin melange that Paula and I have been making every
autumn since the late nineties. It is not particularly challenging. Peeling the
pumpkin is a pain, but things were moving along. A few minutes later, I
realized that neither of us had remembered to saute the red onion, and that the
dish would not be as satisfying as usual. Either the onions would be too harsh,
or the apple sections would disintegrate in the heat.
I was mildly agitated.
I enjoy cooking, and I like to do it well. One of the first things I did after
I was diagnosed was to label the dials for each of the four burners on our
stovetop—front left, back left, etcetera—rather than relying only on the configuration of red
dots. But in this case, instead of turning on the large left front burner, I
turned on the small left back burner. This would not have been of consequence
if the burner had nothing on it at that time. I would have noticed the glowing
ring. But I’d laid the large Pyrex top of our Dutch oven over it. The result
was predictable. When I touched it with a knife, the glass top disintegrated.
So did my composure.
Is there any more stereotypical image of Alzheimer’s as
someone leaving a burner on?
Paula, among the calmest human beings I have known, said
almost nothing about the incident. But she did mention that, two months
earlier, when I was about to leave for Logan Airport, en route to Germany, I left
that same back burner on, though at the lowest setting.
Recalling these recent incidents made me think of the day of
Christmas Eve in 2013, when, though I didn’t yet know it, I was experiencing symptoms
of Alzheimer’s.
The previous day I had intended to sign off on a project I
was managing, the program book for my organization’s annual conference. But, as
often happens when a publication is close to going to press, there were new
edits to make, and I arranged with the design firm I was working with to facilitate
this. Christmas was on a Wednesday that year, and my office was closed on the
day of Christmas Eve, but the design firm intended to stay open until 1 p.m. I
finished up my Christmas shopping first thing in the morning, and I was back at
my house by mid-morning.
Every Christmas Eve I make a ginger-carrot soup, which
includes white wine. Drinking a glass of wine alone almost always makes me
contemplative, and I remember admiring the georgeous purple hues of the afternoon’s
winter sunset.
Then, alas, I remembered. I immediately called the design
firm, but, as I already knew, the office had closed. No one answered. I felt
ill with worry. It seemed conceivable that the delay in sending the electronic
files to the printer could lead to the program books not being ready in time
for our convention.
The day after Christmas, I did get in touch with my main
contact at the firm, and I learned that we had more time to sign off on the
project than I’d realized.
This phone conversation took place while I was visiting
the American Textile History Museum in Lowell with my son, who was home from
college. I was, of course, relieved. But I did not enjoy my visit to the
birthplace of the American industrial revolution, despite experiencing the
sound and fury of a full-scale nineteenth-century textile factory, where
children worked with cotton in their ears. It is still a place I associate with
Alzheimer’s.
After I sent this blogpost for Paula
to proofread, she noted that my recollection of the kitchen accident was inconsistent
with hers. She was not in the kitchen when the accident occurred. I will have
more to say about unreliable memory after I finish Greg O’Brien’s memoir, On Pluto: Inside the Mind of
Alzheimer’s.
Mitch -- this is such a powerful piece. Thanks for sharing. The Pyrex incident sounds like something that could happen to anyone, actually, and I winced with recognition as I read it. (Yesterday, I left oatmeal on the stove and set all of two fire alarms in our house!) But for you, these moments of forgetfulness must take on a new meaning, and I appreciate the insight with which you describe your daily life.
ReplyDeleteI did this years ago and I did NOT have Alzheimers just "in my own world" as teenagers often are!
ReplyDelete